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Did you know?

Black people are

TWICE AS LIKELY

to develop multiple myeloma
(MM) as White people

The survival rates for Black people with MM are similar to those of White people when they receive similar treatments
However, the improvement in survival rates for Black people with MM in recent years has not matched that of White people

Why is that?

There are several reasons why this difference in outcomes exists. Recent studies have shown a few likely causes:

The primary cause is likely a gap in access to treatment. When compared with White patients, Black patients are less likely to receive newer treatments. They also have a longer delay before receiving treatment after they are diagnosed
Location and insurance coverage can also play a part in delaying diagnosis and treatment

What are some of the disparities in care that people of color with MM might face?

Learn more

Looking for educational resources about multiple myeloma for Spanish speakers?

Visit HealthTree Foundation para Mieloma Multiple

It’s understandable to have misgivings about the healthcare system

There may be a lack of trust in the healthcare system overall due to bad experiences in the past. This is not the patients’ fault, but this mistrust can lead to hesitancy to try certain treatments. This is why it is so important to find a doctor you can trust. You should feel able to speak openly about your concerns, treatment, and disease management.

Learn what treatments are available

This can help you have an informed conversation with your doctor.

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The Multiple Myeloma Research Foundation has a guide listing the current treatment options.

Learn about current MM therapies

Know which treatments are recommended at different stages of MM

Ask your doctor why they do or do not agree with some treatment approaches. This can also be useful in determining if you should look for an expert opinion.

The International Myeloma Foundation has a brochure that reviews what MM is and how it can be treated at different stages.

View the guide to MM and treatments

Document everything

If you ask about a specific therapy and your doctor says it’s not right for you, ask to have your request put in your medical file. And make sure to request any documentation after each visit.

Find tips on how to be your own advocate

Trust your gut

If you feel like you still don’t understand all of the treatment options available to you, ask for an expert opinion from an MM specialist. Expert opinions (or “second opinions”) are very common, and your doctor should be supportive of your request.

Let's recap

Black people living with MM have not seen the same improvement in outcomes in recent years as White people living with MM
This gap is mostly due to unequal access to treatment, especially new treatments. Other factors like location and insurance coverage can also play a part
Learn to be your own best advocate. Getting informed about your treatment options can help you feel more empowered. Try to find a doctor who makes you feel seen and heard

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TWICE AS LIKELY

It’s understandable to have misgivings about the healthcare system

How to take action

Learn what treatments are available

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Know which treatments are recommended at different stages of MM

Document everything

Trust your gut

More about equity

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Based on Income

Based on Location

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